2014 FARE Walk for Food Allergy! It was the best FARE walk yet--with a great turnout, awesome entertainment and wonderfully crisp sunny weather. I want to thank all of the many friends, family and members of my research team that spent the afternoon with me. It was not only a ton of fun, but it helped to raise funds and remind us all why childhood food allergy is such an important cause!
1) Creating a common description of anaphylaxis that may be used by healthcare professionals and patients for prompt and accurate diagnosis and treatment of anaphylaxis (including atypical presentations and biphasic reactions),
2) Facilitating partnerships with organizations representing the continuum of emergency care in order to improve recognition, treatment and long-term management of anaphylaxis,
3) Increasing usage of epinephrine, improving awareness of its first-line use in the management of anaphylaxis, and dispelling fears about contraindications and side effects,
4)Working with policymakers at every level to allow all EMTs to carry and administer stock epinephrine
5) Improving emergency department discharge protocols so that patients, particularly those with first-time reactions, are better informed about how to manage the ongoing risk of severe allergic reactions and anaphylaxis. Results of a recent FARE survey showed less than a quarter of respondents were given information about food allergies, referral to an allergist or a prescription for an epinephrine auto-injector upon discharge from the emergency department.
Today I'm pleased to announce the publication of a new study that we've been working on for a number of years. It deals with the important issue of "action plans", which are health management plans that specify exactly what should be done in case of an asthma or food allergy-related emergency. Establishing an emergency action plan is an important component of managing both food allergy and asthma, and is something that all kids with these conditions should have on file with their school--just in case. However, our study found that half of CPS students with food allergy and a quarter of student with asthma do not have an emergency action plan on file with their school. Moreover low-income and minority students are less likely than their more affluent, White peers to have established a health management plan with their school. Therefore, the next phase of this research will determine the most effective ways to reach out to families of these students and facilitate the establishment of up-to-date management plans with their respective schools. Stay tuned for more updates!
Happy September! So sorry for the long delay since my last post. It's been a busy summer--so much to share! Speaking of which, here's a list of some particularly important upcoming conferences that I'll be attending in the next couple of months. Hope to see you soon!
Attending: 9/4-9/6 Emergency Management of Anaphylaxis Summit, Chicago, IL
Speaking: 9/12 Allergy and Asthma Network US Anaphylaxis Summit 2014, Anaheim, CA
Speaking: 9/13 Food Allergy & Anaphylaxis Connection Team Annual Food Allergy Conference Anaheim, CA
Speaking: 9/19 Allergy and Asthma Network US Anaphylaxis Summit 2014, Atlanta, GA
Speaking: 9/26-9/28 Food Allergy Bloggers Conference Las Vegas, NV
Speaking: 10/2 Food Allergies and Anaphylaxis in Schools, Kalamazoo, MI
Speaking: 10/3 Allergy, Asthma & Immunology Conference for Practicing Providers, Kalamazoo, MI
Speaking: 10/10 Allergy and Asthma Network US Anaphylaxis Summit 2014, Denver, CO
Speaking: 10/17 Allergy and Asthma Network US Anaphylaxis Summit 2014 , Philadelphia, PA
Speaking: 10/24-10/25 Food Allergy & Anaphylaxis Connection Team Annual Teen Conference, Chicago, IL
I just wanted to give a shout out to great companies like POSoncloud (www.posoncloud.com). They have not only developed a tool for restaurants to improve their service but they also make restaurants very allergen aware! Their tool will allow waiters to have allergen details on their fingertips at the time of ordering. On a recent trip to my hometown, Louisville, KY, I met the CEO and co-founder Sunny Dronawat, who showed me the system and highlighted features that can help restaurants, hospital and school cafeterias avoid accidental ingestions and allergic reactions.
This can help both on the side of ordering but sends the message to the kitchen staff so their are multiple checks to keep us safe. We need more companies like this that help support protecting children and adults with food allergy.
I mentioned last week. This bill increases access to emergency epinephrine in schools and marks an important step toward ensuring the health and well-being of our kids.
In order to participate in the study, adolescents between the ages of 14 and 22 years who currently have a food allergy are being asked to complete an anonymous and confidential electronic survey. No protected health or identifying information is being collected. No compensation is being offered in exchange for study participation. This study is being conducted by myself, Dr. Ruchi Gupta, MD, MPH of Northwestern University’s Feinberg School of Medicine. All aspects of this research study have been approved by the Northwestern Institutional Review Board, IRB STU00097291.
If you are between the ages of 18 and 22 and are interested in participating in this study, please click on this secure link to access the survey. If you are the parent of a child with a food allergy between the ages of 14 and 17 and have no objections to your adolescent child participating in this study, please forward him/her this link.
I'm pleased to announce that this Wednesday Governor Quinn will be signing a bill into law, for which food allergy advocates like myself have been tirelessly advocating. The new law will expand Illinois' existing stock epinephrine law by permitting people besides nurses to administer epinephrine to children having an allergic reaction. This is important because many schools lack full-time nurses, who previously were the only personnel authorized to administer epinephrine to students suspected of having a severe allergic reaction. Importantly, the new law also stipulates training requirements for school staff and provides a mechanism to report stock epinephrine use to a centralized database.
I'm going to be attending a formal bill-signing event with Governor Quinn this Wednesday and hopefully I'll be able to take some pictures. Regardless, I want to say thanks to everybody out there advocating for children with food allergy--whether it be via your emails, phone calls, or private conversations--every bit makes a difference.
Also, the entire text of the bill is found here, and it's surprisingly easy to read (for a legal document), so take a look if you're interested.
FOR IMMEDIATE RELEASE:
Food Allergy Research & Education Welcomes Dr. Ruchi Gupta to
Medical Advisory Board, Education Working Group
McLean, Va. (July 17, 2014) – Food Allergy Research & Education (FARE), the nation’s leading nonprofit dedicated to food allergy, announced Thursday that Ruchi Gupta, M.D., M.P.H., a researcher, pediatrician and professor, has been elected to its highly regarded Medical Advisory Board. Dr. Gupta has also joined FARE’s Education Working Group.
Dr. Gupta, an associate professor of pediatrics and director of the Center for Maternal and Child Health at Northwestern University Feinberg School of Medicine, speaks nationally and internationally on the topic of food allergy. Dr. Gupta is also a founding member of the Northwestern Food Allergy Research Consortium. Her research and clinical interests include childhood food allergy and childhood asthma. Dr. Gupta has authored over 50 peer-reviewed publications and has obtained grant support through the National Institutes of Health (NIH), FARE, the National Children's Study and the Robert Wood Johnson (RWJ) Physician Faculty Scholars award. Of particular note, Dr. Gupta was the lead author of the FARE-funded 2011 landmark study published by the journal Pediatrics on childhood food allergy prevalence in the U.S. More recently, she and her team published an economic impact study published in JAMA Pediatrics and funded by FARE, which concluded that caring for children with food allergies costs U.S. families $24.8 billion annually.
Dr. Gupta is the pediatric attending at the Ann & Robert H. Lurie Children’s Hospital of Chicago and is the mother of a child with food allergies. Her key interest is in working to improve the state of childhood food allergy in the U.S. – specifically in the areas of economics, physician and school management, improving diagnostic tests and treatments and quality of life. She is also the author of the book, “The Food Allergy Experience.”
“Having dedicated much of my work to the area of food allergy, I am honored to work more closely with the nation’s leading food allergy nonprofit as a member of the Medical Advisory Board and the Education Working Group,” Dr. Gupta said. “As a mother of a child with food allergies, educating the public about this potentially life-threatening disease is a topic I am passionate about, and I look forward to working together with FARE in its mission to make the world safe for those with food allergies.”
Gupta joins FARE’s 12-member Medical Advisory Board, comprising the nation’s leading food allergy experts, and FARE’s 10-member Education Working Group, a multidisciplinary committee tasked with helping guide FARE’s education initiatives and materials.
“We are pleased to welcome Ruchi to FARE’s Medical Advisory Board and Education Working Group,” said John L. Lehr, chief executive officer of FARE. “As a researcher and the parent of a child with food allergies, she brings a unique perspective to her role on these committees. We have collaborated with Ruchi for several years, and she is well known to many in the food allergy community already. She will be a tremendous asset and we look forward to continuing to work with her in the years ahead.”
As a class, the students formed two groups to develop Public Service Announcements (PSAs) to educate their community about asthma. One PSA featured an original superhero, Inhaler Man, to help convey the message about taking one’s inhaler and avoiding triggers. The other PSA featured important asthma facts that the students felt everyone should know. The program culminated with an assembly to all 7th and 8th grade students at Beasley Academic Center and during this assembly the PSAs were shown and a questionnaire was given to show how effective the PSAs were. It was so much fun to work with the students at Beasley Academic Center, they had so much enthusiasm and really taught us some things about asthma and life along the way!
The students also helped to develop their own website to showcase their PSAs and their photos of asthma triggers. You can check it out by clicking on this link:
Recently, team Ruchi attended and presented at the first FARE National Food Allergy Conference. In addition to speaking to food allergy community leaders at the Leadership Summit and presenting on barriers to food allergy reporting in Chicago Public Schools, our team also launched an adolescent risk taking study for 14-22 year olds with food allergies. The launch was quite successful, with more than 20 teens completing our anonymous and confidential survey on site!
If you have a food allergic adolescent child and would like him/her to participate in the study, please be on the lookout for further information from FARE. It was a pleasure to see numerous friends, colleagues, and all the dedicated members of the food allergy community members at last month’s FARE conference! We look forward to staying in touch and working with all of you!
For more information about The Melchiorre Family Food Allergy Research Consortium at Northwestern Medicine, take a look at this recent article.
After over a year and a half of blogging, I just realized that I've never mentioned on my blog that I have a twitter account as well. Whoops! Feel free to follow me @ruchisgupta and thanks for continuing to read my blog!
This weekend I will be traveling to Copenhagen to attend the 2014 annual meeting of the European Academy of Allergy and Clinical Immunology, which will last until June 11. On Monday, I will be giving a talk entitled Cost-Effective Allergy Management: How to survive and thrive. Here’s a short summary of my presentation:
—Coping with food allergies is a major burden for allergic consumers, for their families, and for the economy as a whole. Until recently the size of this burden was not known. Dr. Gupta will present the latest information on research that measured the economic and quality of life burden of food allergy in the US. In addition, Dr. Gupta will discuss cost-effective options for food allergy management. This presentation will give the audience important information to help understand the costs associated with food allergy and provide economically prudent tips for the food allergic consumer. —
FARE's annual National Food Allergy Conference will begin! As always, this year's conference provides a fabulous opportunity to learn lots about the latest advances in food allergy research as well as discover new tips for managing food allergies. Perhaps most importantly, the conference provides a chance to meet similarly minded food allergy experts and advocates from across the country.
I will personally be speaking on Saturday June 21 about our recent "Improving Food Allergy Verification and Medication Access in Chicago Public Schools" study, which aims to understand the barriers that parents face in reporting their children’s food allergies to CPS schools. This session will help parents with students in CPS schools who have food allergies learn more about this initiative, increase communication with their schools, and provide more education and resources.
Take a look at the interactive conference schedule to find out about more great talks and workshops.
my presentation and posted it to youtube, in case you're interested in checking it out. It's roughly an hour long and goes into detail about some of my own research, as well as the current state of the field. Also, if you're interested in checking out more food allergy-related webinars, take a look at FARE's website for an archive of past presentations.
As I mentioned in a previous post, I recently traveled to Vancouver to attend the annual meeting of the Pediatric Academic Societies. While I was there, I presented a poster sharing results from an ongoing project which investigates parent-reported quality of care received by families of children with food allergy. Since pediatricians are often the first and only source of food allergy care, we were particularly interested in comparing parent satisfaction and quality of care received by families from both pediatricians & allergists.
After comparing data from 940 mothers and fathers of children with food allergy, we found that overall parents reported equally high levels of trust in their physician and satisfaction with the care they received. However, parents reported that both allergists and pediatrics missed important food allergy management steps during their visits. For example, many physicians failed to prescribe an epinephrine auto-injector to patients, even when they strongly suspect that the child has a food allergy. Also, we found that physicians may only follow all FA management steps when they perceive the child to be at high risk of anaphylaxis.
Moreover, since we collected data independently from both mothers and fathers, we were able to compare their responses. We found systematic differences in the responses of mothers and fathers with fathers more likely to respond favorably to questions about the quality of care received and the management steps followed by physicians.
Thus, moving forward, we feel that we need to increase education in healthcare settings around recognition of anaphylaxis symptoms and how/when to use injectable epinephrine. We also feel that increased provider education is needed to ensure that they adhere to the NIAID’s clinical food allergy management guidelines—particularly with regard to providing written asthma action plans and counseling about long-term prognosis. Please see below some summary tables of our data.
Though it seemed like it would never arrive, Spring has finally sprung here in Chicago! That means--of course--that it's time for FARE's annual Spring Luncheon at the Four Seasons Hotel! I have been attending these luncheons for years and they're always fabulous. Not only does this year's luncheon provide a great meal and an opportunity to support FARE's important mission--it is a great way to connect with the regional food allergy advocacy community and learn about all the fantastic work that is being done to make life better for kids with food allergies. I'm also excited for this year's keynote speaker--Iron Chef and host of the Bravo show Around the World in 80 Plates--Cat Cora. To register or to learn more, please check out the event website. Hope to see you this Friday!